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Changing Ellie’s nappy for the first time without her being hooked up to monitors, the first time she was able to touch her toes, her first small family picnic outside hospital grounds…these are the things that will stick with young Ellie’s family forever as big milestones. Ellie’s life was…
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Six weeks after giving birth to Hudson, Emily’s world came crashing around her when she discovered she needed a new heart. She was struggling to walk from the living room to her bedroom without being out of breath. At times she would gasp for air, she lost her appetite and there were…
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As a teenager, Emily was living her dream. A fit and healthy 15-year-old, Emily moved to London to train as a classical ballet dancer, until a shock Type 1 diabetes diagnosis changed everything. “Having diabetes as a ballet dancer was insanely difficult to manage,” Emily recalls.…
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What a journey our little daughter Emma has had in her 18 months of life. Born with biliary atresia, there was no other option but a liver transplant.She deteriorated very quickly, and was listed for transplant the week before Christmas, at only 5 months old. We moved our…
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Our daughter Erica passed away and became an organ and tissue donor at the young age of 27. Out of the blue she became acutely unwell, starting with a massive headache, later found to have been caused by a cerebral oedema. After her admission to hospital it became clear her prognosis was grave,…
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Idiopathic Pulmonary Fibrosis. That diagnosis defined my future. A disease lacking cause or reason and without a transplant I had a relatively short future.With urgency my specialist began pre-transplant testing and I was fortunate to be listed.Like many other potential recipients the wait…
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Ethan (or Jimmy as he was affectionately known) was a three-year-old boy who lived his life to the full. He was up before dawn, doing whatever he could before he fell asleep again (wherever that might have been). He lived and he loved. Always affectionate, with a kiss and a cuddle for anybody…
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Polycystic kidney disease has burdened our family for 3 generations now. My mother who was admitted into hospital 4 years with her kidneys functioning at just 7%, is lucky to be alive. Thanks to an angel, mum recently received a kidney and is starting to lead a normal life again! My brother and I…
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Little Evie, at age 6, suddenly became unwell with several nose bleeds, refusing to eat her food and not wanting to go to school because she felt so unwell. An undiagnosed genetic condition, Wilson’s disease, was suddenly playing havoc with her body and before they knew it, Evie’s parents were…
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When she was around 46, my mother was told that she was very ill and required a lung transplant. Over the next three years, she deteriorated substantially. Very early one morning, the hospital called advising us that a transplant was possible and she had to get to the hospital. We were elated…
