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Changing Ellie’s nappy for the first time without her being hooked up to monitors, the first time she was able to touch her toes, her first small family picnic outside hospital grounds…these are the things that will stick with young Ellie’s family forever as big milestones. Ellie’s life was… - Story
Our daughter Erica passed away and became an organ and tissue donor at the young age of 27. Out of the blue she became acutely unwell, starting with a massive headache, later found to have been caused by a cerebral oedema. After her admission to hospital it became clear her prognosis was grave,… - Story
Idiopathic Pulmonary Fibrosis. That diagnosis defined my future. A disease lacking cause or reason and without a transplant I had a relatively short future. With urgency my specialist began pre-transplant testing and I was fortunate to be listed. Like many other potential recipients… - Story
Ethan (or Jimmy as he was affectionately known) was a three-year-old boy who lived his life to the full. He was up before dawn, doing whatever he could before he fell asleep again (wherever that might have been). He lived and he loved. Always affectionate, with a kiss and a cuddle for anybody… - Story
Little Evie, at age 6, suddenly became unwell with several nose bleeds, refusing to eat her food and not wanting to go to school because she felt so unwell. An undiagnosed genetic condition, Wilson’s disease, was suddenly playing havoc with her body and before they knew it, Evie’s parents were… - Story
My name is Melissa and I consider myself to be very fortunate. I was diagnosed with a corneal disease, Kerataconus, 23 years ago at the age of 21. I was told then that should my condition deteriorate I would require a corneal graft, 'though we don't do many of those'. In my late thirties I was… - Story
My name is Laurn and I was given the gift of life. I had cystic fibrosis with probably the worst infection in the lungs you could have. I went on the transplant waiting list and waited six months before I got the call. When I woke up in ICU two days later I couldn't believe the difference.… - Story
One of our organ donor coordinators could get a call at 2 am saying a family has consented to donating a loved one's organs. The impacting part of that call is you know there's a family out there facing sudden grief and coming to terms with the loss of a loved one who was healthy 24 hours ago… - Story
After some months of being treated for a duodenal ulcer, I was referred to a physician who immediately diagnosed me with a renal problem and within two days I was admitted to hospital. I was 56 years old. I was told months later that an ulcer can be caused by renal failure. It was there that I… - Story
Hi, my name is James and I am 20 years old. Just being able to say that is an achievement in itself. When I was 11 years old, I was diagnosed with pulmonary hypertension after collapsing during a game of football with my mates at school. After months of trials with medication, the doctors told…