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Blissfully in love with my husband, we were planning to start a family 12 months after we were married. I was born with several disabilities and so we decided to have genetic counselling to find out if the baby would inherit my disabilities. After several appointments with the doctors I was given…
- Story
Lucas was an amazing little boy who brought so much enjoyment into our lives. Every day was an adventure and he would not let anything get in his way. He enjoyed playing with his sister and his friends, fishing with his dad and mucking around with his dog Jessie. Lucas has a very special…
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‘In the 15 years I spent specialising in emergency and major trauma nursing, I’ve probably talked with thousands of families who have lost a loved one. I have a real appreciation of just how difficult those conversations are for our staff, and you really can't take that experience away from what… - News
On Australia Day, Lucinda Barry, Chief Executive Officer and Board Member of the Organ and Tissue Authority (OTA) received a Member of the Order of Australia (AM) Award. On Australia Day, Lucinda Barry, Chief Executive Officer and Board Member of the Organ and Tissue Authority (OTA) received a…
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Lucy was diagnosed with a rare form of heart failure called dilated cardiomyopathy when she was only 3 weeks old. Her only option was a heart transplant, which she received after 7 months on the waitlist. ‘This is very difficult to put into words,’ mum Kate says of the experience. ‘It was an…
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When Lacey lost her beloved twin brother Luke, she was understandably devastated, as were their entire family. Lacey and Luke were close and had shared a lifetime of experiences in their 24 years. Lacey fondly remembers Luke’s cheeky sense of humour, his profound love of music and…
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‘As a nurse, I’d found my little niche working behind the scenes on the logistical side of organ donation…and now as the Clinical Lead for OrganMatch, I find it rewarding to say that I’ve helped to move organ donation into the 21st century’ - Luke Datson As told by Luke Datson, The Organ and… - Story
Luke is a father of 3 children and husband to a wonderful wife. But beyond his family life, he is also grateful for 2 life-changing corneal grafts. Luke received his first transplant at age 13 and his second at 15. ‘When I was about 13, my vision deteriorated so much that I couldn’t see the…
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Just days after birth, baby Madison – a fraternal twin – was diagnosed with aortic stenosis, a serious congenital heart defect. It meant that, along with several other defects in her heart, Madison’s aortic arch was too narrow for blood to flow freely to her heart. In her… - Story
Maia was barely one day old when her parents knew something was terribly wrong. She was flat, lethargic, not feeding well and seemed to be finding it hard to breathe. Maia had a rare genetic disorder, propionic acidemia, in which the body is unable to process certain proteins and fats properly…
