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- Story
Andrew’s life was transformed by the generosity of strangers not once, but 3 times.He was diagnosed in his early twenties with narcolepsy, a sleep disorder he initially managed with medication. However, his world turned upside down when he received an unexpected diagnosis of cardiomyopathy – an…
- Story
My name is Angus. I am now 21 but my story begins when I was 9 years old. I was camping with my family and friends when I became sick. Nothing too concerning at the time, just typical flu-like symptoms. But after a week I hadn't improved so my parents decided I should see our GP.The blood tests…
- Story
At the age of 15 my health started to deteriorate and by the age of 20 I had my left kidney removed. I managed to live a fulfilled life for 30 years except the doctors said I could never have a family because of my renal condition. At this time in my life I adopted two children aged five and…
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At the age of 17 I was diagnosed with a liver disease called Primary Sclerosing Cholangitis (PSC). The news came as quite a shock to me as I was quite healthy and active as a kid and loved my sports, especially soccer. Whilst the PSC was slow progressing, I had other health issues (…
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Anthony was the family's first male grandchild, adept at getting his own way from an early age. Already showing signs of being a gifted child he knew complete movie scripts by the time he was three and taught himself Spanish from the TV. His fascination with throwing things over the fence -…
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I received a liver transplant because I have a very rare disease called Wilson's disease. Six months after my 25th birthday someone noticed the whites of my eyes were yellow. Six weeks later I was in a coma in hospital with complete liver failure and only days or hours to live.The doctors decided…
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Archer was diagnosed with Alpha 1 antitrypsin deficiency, a rare genetic condition affecting both his liver and lungs, at 3 months old.Archer endured endless hospital admissions, procedures and operations. In 2018, he suffered a life-threatening bleed and was placed on the transplant list.…
- Story
Arlo’s journey to receiving a liver transplant was one of resilience and hope. Diagnosed with congenital hepatic fibrosis and polycystic kidney disease just after his second birthday, Arlo faced years of medical challenges. Frequent hospital visits, sepsis episodes, and needing…
- Story
Aru is a bright, happy and energetic 8-year-old with a big personality. Her favourite school subject is physical education, and she loves arts and crafts – she wants to be an artist when she grows up. You’d never guess that Aru has, in her short life, already faced life-threatening health…
- Story
I was 16 when I found out I had been born with one kidney. In 1971, I became the first person to have a baby while on dialysis. Unfortunately, Andrew only lived a few hours. Lisa came in 1973 and again only lived a few hours. I went along without dialysis until 1979 when my kidney gave up and I…
