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- Story
My name is Aleisha and I was diagnosed at a young age with Alport syndrome, a genetic kidney disease. This type of disease also effects my hearing and eyesight, and I started wearing hearing aids by the time I was at pre-school.I have always had a positive attitude with my Alports and did my best…
- Story
My only child Alesha was killed at 13 years and 10 months. The doctors looked at me and said there was nothing more they could do and they were sorry. This was the day I really experienced what true heartbreak felt like.So many people say how amazing we were for the gift we gave, but to be…
- Story
Alex was just 19 years old when he died, as a result of complications with his Type 1 diabetes. He was living in Adelaide, having the time of his life, pursuing his dreams by studying to become an aeronautical engineer. His death was, for us, completely out of the blue. For someone who had been…
- Story
In May 2011 my partner and I welcomed our little girl into the world. To our devastation, at 30 weeks gestation, she was diagnosed with Autosomal Recessive Polycystic Kidney Disease, a rare genetic condition which destroys the kidneys and lungs. Our little girl was born six weeks premature and…
- Story
Ali was 32. She was my wife and devoted mother to our two beautiful children, James (three) and Stella (one). When she collapsed at home in the early hours and called out to me I knew straight away that something bad was happening, but I wasn't prepared for just how bad. I didn't know it at the…
- Story
I was nearly two when I was diagnosed with Type 1 Diabetes (Juvenile Diabetes). My parents were told this was a 'life sentence, with no cure'. That news changed my whole family. Daily urine testing and injecting became the routine. As time went by and technology improved, blood testing with…
- Story
At the age of 20 I was in the prime of my life. I had my health, I had freedom and I was invincible.I came down with a bad cold and I was sent home from work with the sweats and a barking cough. On the way home I dropped by a local doctor, who assured me it was a chest infection, and I began a…
- Story
A Melbourne teenager lost his life when he was hit by a car at Christmas - but his death saved three others. Andrew, 17, died as he lived - generously. He was killed by a car, but because he was an organ donor, his heart, liver and kidney saved three lives. His parents, Lynne and Laurie…
- Story
After being at end stage heart failure the time had eventually come for me to be implanted with a Left Ventricular Assist Device (LVAD) to keep me alive until a donor heart became available. Arriving at the Alfred Hospital in Melbourne to talk about the LVAD, we were informed a donor heart had…
- Story
I had a healthy childhood, married my wonderful wife and had three beautiful girls. Then, at age 41, my life changed. I was diagnosed with cirrhosis of the liver, caused by a genetic disease, Alpha 1 Anti-Trypsin Deficiency Syndrome. I spent the next four years in and out of hospital and…
