Madison - tissue recipient, VIC
Just days after birth, baby Madison – a fraternal twin – was diagnosed with aortic stenosis, a serious congenital heart defect. It meant that, along with several other defects in her heart, Madison’s aortic arch was too narrow for blood to flow freely to her heart.
In her first four months of life, Madison experienced a series of medical emergencies and underwent three major surgeries. During her second open heart surgery – when her heart was just the size of a 50-cent piece – donor tissue was transplanted into Madison’s aortic arch.
One of many procedures, it was the gift of donor tissue that gave Madison her best chance of survival.
“Madi’s story is so complex and the situation for our family during that time was very difficult,” Madison’s mum, Hannah said.
“Madi’s life journey is different to her brother and sister. Despite some other health challenges, she’s living her best life as a 6-year-old. She loves her siblings, she’s going to gymnastics, and she does her very best to keep up with her twin sister.
“The gift of tissue donation has been life-saving for Madi and precious for our whole family. We have endless gratitude.”