National Wave 1 Donor Family Study

The OTA conducted a national study of family experiences of organ and tissue donation for transplantation. The purpose of this study was to provide evidence-based insight into families’ experiences of the donation process from initial donation conversations through to the follow up support provided to families after a donation decision has been made.

This research builds on similar work undertaken with donor families since 1995, by the Australasian Transplant Coordinators Association (ACTA). The OTA will undertake ongoing waves of the research to occur every two years.

Wave 1 of the study by the OTA provides feedback from families who made a donation decision in 2010 and 2011, including families that consented to or declined donation.  The study commenced in September 2013 and involved 132 families who made a donation decision in 2010 and 2011.  A total of 186 individual family members agreed to participate in the study and completed a survey questionnaire and/or participated in a face-to-face interview.

The OTA thanks the family members who volunteered to participate in this study and share their experience. The Executive Summary can be accessed here and the full report can be accessed here.

Wave 2 of the study is being planned to seek feedback from families who made a donation decision in 2012 and 2013.

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DISCOVER

the facts about organ and
tissue donation

  • Frequently asked questions
  • Understanding donation

DECIDE

and register on the Australian
Organ Donor Register

  • Register your decision

DISCUSS

your donation decision with family and friends

  • Who needs to know?
  • How to start the discussion